More recent pictures are down the bottom!Enjoy!
Thank you Donna we think you guys are pretty awesome too!! We will keep Maggi's link on here as well. We are all doing well and hope you are too.
We send you out love and think that you are awesome parents. We still have Dylan's page as a link on Maggi's website. We pray this finds you all doing well.
Not sure how to leave my description and request to join. Can you tell me how. I will explain our situation in a private message first. Thank you so much
This helped alot! just to be sure, this is a genetic disorder? I am doing a school project on it.