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Thanks for visiting my page. Please sign my guestbook and leave a message. Don't forget to add a photo if you have one.
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Written by Kaitlyn Laughlin on Jan. 12, 2012
hey! I am a 12 year old girl. I am doing a project on Jacobsens Syndrome. It is very interesting. I am very glad I got this to do my project on.


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Written by Liz Gladish on Dec. 7, 2011
Hello! My name is Liz and my daughter Ryan has chromo 11 deletion and trisomy of another chromo (we are still awaiting the final diagnosis). I requested to join your facebook page. We live in Cincinnati, Ohio, USA and I would love to connect with you!


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Written by Avto on Sep. 9, 2011
Good website. Thanks!


Website: http://naavtotrasse.ru/
Written by Jenna on Aug. 1, 2011
Hi
My name is Jenna and i came across your site. Dylan is an amazing courageous, strong and determined fighter. he is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and I love it when people sign my guestbook. www.miraclechamp.webs.com


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Website: http://www.miraclechamp.webs.com
Written by Dylans Mum on Jun. 28, 2010
Hi thanks for all your messages, trying to keep on top of it all! If I don't respond right away please don't worry I will get there! :) Cheers and thanks again!


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Written by stephanie on Apr. 8, 2010
great site-i found it while searching for more info on trisomy 9p. my 3 year old has this and i am finding it hard to find others who we relate to. i clicked to join your facebook group-but it didnt allow me to enter a message-please add me. thanks-stephanie


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Written by Mayra wong on Mar. 8, 2010
Hi!!! This is a wonderful thing you are doing having a website. Is fabulous. Love the pictures. It looks that you guys had a great time. My daughter Nathalie as JS as well. I am also in facebook.. Take care..


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Written by Nicole in Ontario Canada on Feb. 19, 2010
Just wanted to say hi! I found your website and it's great! My son Sam is 5, he has Trisomy 9P 47XYY. I would love to connect with people to share stories and chat.


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Written by Chelsea Jackson on Dec. 18, 2009
Your son is beautiful, and you seem to have a loving and supportive family from the photos. God bless you, and thank you for the website. One of my closest friends is now an uncle to twins and one has Jacobsen's. Knowing about lots of families helps.


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Written by Heather on Nov. 21, 2009
Hi Marie,

I took the liberty of adding your wonderful site about your delightful little Dylan to the blog roll of Erin Kewer's blog (the link listed). Hope that's ok!

Hope you guys are doing well, feeling better...

Hugs,
Heather


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Website: http://www.jacobsenssyndromeawareness.com
Written by Kirsten Harper on Nov. 10, 2009
Hey Dylan!
I'm missing you, hopefully I will be able to spend the last week of term down at Sandon with you.
Hope to see you soon
<3 Kirsten


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Written by Gayle & Olivia Purdue on May. 5, 2009
Hi Guys,
We were very excited to check out your website and to learn you live in Australia. We are in Humpty Doo (yes it is a funny name, but really is a rural town in the Northern Territory). We would love to keep in contact with you and share our stories. We have added a photo of ourselves for you and look forward to an email.
Cheers
Gayle & Olivia


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Written by Afryka on Apr. 26, 2009
Great site you guys! Hope you're having a great weekend.
Written by Aunty Debi on Dec. 29, 2008
Hi Dylan and Marie
Wow...how clever are you to have this great site. I saw the link on facebook and had to have a stickybeak. This is a great way for Dylan and all his overseas and Oz buddies to keep in touch. We all hope your New Year is full of fun, laughter and happy times and we look forward to seeing you soon :)
Love Aunty Deb and Uncle Rod


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Written by Payton & Kensyn Hardey on Nov. 10, 2008
HELLO !!! our gorgeous cousin :) we love you and are having fun looking at your pictures, can't wait untill we can play again soon!


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Latest comments

19.06 | 00:43

Thank you Donna we think you guys are pretty awesome too!! We will keep Maggi's link on here as well. We are all doing well and hope you are too.

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18.06 | 23:17

We send you out love and think that you are awesome parents. We still have Dylan's page as a link on Maggi's website. We pray this finds you all doing well.

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18.03 | 08:41

Not sure how to leave my description and request to join. Can you tell me how. I will explain our situation in a private message first. Thank you so much

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19.02 | 16:32

This helped alot! just to be sure, this is a genetic disorder? I am doing a school project on it.

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